Posted by Karla (165.189.41.11) on June 29, 1999 at 13:05:03:
In Reply to: Need Help posted by Todd on June 29, 1999 at 12:35:06:
Stress the level of pain, stress how it is disabilitating (impact of home and work life or lack there of), stress new research is showing it is not just a matter of take an asprin and call me in the morning. That there are physical abonormalities in our brain (ie. grey cells).
Be sure to have copy of DJ's survey and let them know how the only meds available don't always work for some and the side effects are horrible for those that the medicines do work for. That we need new medicines and hope. You can use Maxalt for example. "No studies on saftey of this medicine if taken more than 4x in one month." Yet our drs. are prescribing it to us to take daily or as needed. How safe is it? That info is in Maxalt insert your dr. or pharmasist could help you out if you did want to use that idea.
You will do fine. Hang in there. Put in info you would want your dr, family, friends, drug makers, researchers, etc. to hear. You have there attention, use it if you can. A lot of times tv stations have there questions already drawn up and you are not given the liberty of a "free format" to say what you want. You may want to call and ask them if you will be given an oportunity to voice or ask to talk to the person doing the interview and see if they would like help forming there questions. Just an idea.