Posted by David Chalfant (208.30.14.153) on July 11, 1999 at 18:51:25:
In Reply to: I never new others had the same problem as me posted by Trent Hatfield on July 11, 1999 at 04:54:59:
Hi Trent. I am happy to see you found CH.com. you will be amazed to find how much in common, especially the things we do when we have an attack. Man, the things I tried to stop the pain were amazingly similiar to the folks here at this great site. DO come back. We are starting a non profit organization Called OUCH. The goals of OUCH are to gain reconition as sufferers of a highly probable brain abnormality. CHs are pretty rare according to statics of researchers, but many of us the the numbers are higher. Many people are out there suffering from this "beast"
constantly being misdiagnosed due to the fact that the medical community is unaware of the legitamacy of CHs . Others are ignorant,or more politely, uninformed. I have wasted a lot of money running in to dead ends. As you will see, It takes many a long time to find real help
But among us are chronic sufferers who have not found relief. They give me strength and the desire to support OUCH and the opportunity to inform my local area about CHs and the effects on our quality of life, our family, ect. We WILL find effective treatment and support for the disabled. So hang with us Trent. We would like to here your imput and help to support Ch.com and OUCH.
Pain free Days. DC