Posted by Rick Richards (63.73.4.78) on August 23, 1999 at 11:56:13:
I am so thankful that there is a place for CH people, my husband has has CH for the last 7 years and we have seen more doctors than we both have fingers and toes to count on.
They all say the same thing, try no caffeine, no chocolate change your diet lets try a new med but the end is always the same, we still deal w/the CH.
This last series of CH has lasted almost 4 months and have been so severe they scare me. We have been to ER more times than we can afford and now my husband is unable to hold a job that he had for 14 years because he uses all his vacation, sick and personal leave time for CH. No one understands until they have been here. We have no income at this point because I am unable to work, due to an auto accident 3 yrs ago and 4 back surgeries. We have tried so many drugs, accupuncture omitting foods but we still have CH.
My husband is SUICIDAL and that SCARES me I am afraid to leave him alone for fear that when I come home he will have left me. Our 18 yr old daughter is afraid to move out for college because she may never see her father again. Our grandchildren don't understand why papa can't play the way he used to.
WHY?????????????????????? can't they find a control for CH, are we ALL not important enough to do the research that is neccessary to help all CH people.
Now we are against a dilema because we have no insurance and no one will help with the financial burden to this disease, we are using what is left of our retirement money to live and it is going very quickly.
What can we look forward to??????????????????????????????????????
I want to thank the person or persons responsible for this channel or link whatever it is called.
It has help me, unfortunately my husband doesn't do much on the computer but will listen to me if I am on researching.
The person that had 18 in one day well we have been there and all we got from doctors was You could have killed him by giving him 3 injections in a 24 hr period, well doc if something doesn't change we won't be worrying about the injections taking him from us , he might do it himself!!
oh, God please be listening we need help!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
signed
exhausted