Posted by Margi (220.127.116.11) on September 09, 1999 at 13:24:47:
In Reply to: dangers related posted by Daughter of Cluster Victim on September 09, 1999 at 11:50:33:
Everyone is right, make sure your dad's doc knows what is going on. My husband has been a sufferer for more than 20 years and it has to be THE most helpless feeling in the world to stand by and watch that pain. Believe me, I KNOW where you're coming from.
Please stay with us and read everything you can for some relief suggestions. Check out the buttons on the left side of the board and learn, learn, learn. Our doctors are just now beginning to realize that cluster is different than migraine and attention and treatment needs to be immediate.
Please feel free to email me anytime, I've had lots of supporter experience. I've done some writing about the supporter's end of things and maybe something could be of value to you. You didn't include your email address but I would be more than happy to send it to you if you want. My email is firstname.lastname@example.org.
Let us know how your dad is doing, and get busy with your research.
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