Posted by Barbara D. (220.127.116.11) on September 10, 1999 at 05:59:35:
In Reply to: Topamax users? posted by Joe Stone on September 08, 1999 at 18:20:15:
Week #1 50mg at night. first 2 days zombie like feeling - after that got hyper. Headaches coming about twice a day.
Week #2 - 50mg morning 50mg night Headaches still with me, but still hyper. Headaches decreasing. some short term memory loss (especially words - just couldn't think of what I wanted to say - they were right there but just wouldn't come out...) Went back to work - First time in over a year -
Week #3 50mg morning 100mg evening. No HA since last day of week #2. Worked every day and have had energy (first time in over 2 years) Thinking has returned (not really normal yet, but a lot better).
Week #4: 100mg morning 100mg evening - This began this morning and so far so good. Still HA free (over a week now). Am still afraid to say it our loud, but I feel good and that's something I haven't said in a long long time.
I'm not taking any other meds for CH. Right now I do have some alergy problems (our weather here in East Texas is horrible for alergies and EVERYONE has alergy problems, so am taking some alergy meds, but hopefully it will rain and get things settled down before long).
Give Dr. Klapper a "hug" for me and tell him I have a LOT of hope for TOpamax am keeping fingers crossed that it is the "magic" preventative for me also since nothing else has helped.
Also one question. Is this going to be good for long term use? I haven't seen anything on the long term effects of this drug and my neuro only put one refill on my Rx. I'm gonna have to call him about it next week and need to know something on that if I have a problem with him (don't think I will, but need some info just in case.)
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