But WE all DO NOT know what you are talking about....

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Posted by Cathy ( on September 12, 1999 at 11:54:11:

In Reply to: The Term posted by Mike on September 12, 1999 at 10:56:02:

When you mention "cluster migraines" WE all DO NOT know what you are talking about. I know what a cluster is AND I know what a migraine is. However, my neuro has never mentioned that I have "cluster migraines".

In reply to your post to Pat down the board a ways, yes some people do get offended when you speak of migraines here at ch.com. WE feel that if you have migraines, and migraines alone, this is not the best site for you. WE cannot help you if you suffer from migraines alone. And you cannot help those that suffer from clusters alone, if it's migraines you have. I suffer from both. I can try and help those that have either cluster or migraine. I can learn from those with either. BUT, those with only cluster attacks, for whom this board was intended, cannot help migraine HA people. And migraine HA only people cannot help them.

Now, as for "cluster migraine", I can deal with the term, as I know what both are like. And I know the term is probably coming from an uneducated doctor, as the literature on "cluster migraines" ain't there. So, I am still waiting to hear an answer to Drummer's question from yesterday......what is a "migraine cluster"? My definition is my own. Not the board's, not my neuro's, and not anything I got from any literature, book, pamphlet or magazine. Since you say you suffer from the affliction "cluster migraines" please tell US what the hell it is!!!
If you suffer from clusters, call them clusters. If you suffer from migraines, call them migraines. If you suffer from both say you suffer from both clusters and migraines. But, in my opinion, you are using a term that is not recognized by a majority who visit this board. Clarification is needed. And I have yet to see it.


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