Posted by Mia (22.214.171.124) on September 23, 1999 at 13:28:50:
I am just so baffled about the lack of awareness for CH. I have written before and shared that my father is a victim of the demon. I am just frustrated that there is nothing else medically that we can do and that not only physically but also mentally this is the torment of a lifetime to anyone that is unfortunate to be inflicted with CH.
I wanted to share with you that I might not make much difference but I have been sending email after email to news affiliates and even one to the radio station I listen to with the hopes that if we can get some of these media persons to see there is pain and suffering right in our midst and that medical science has apparently failed to recognize it as much more than a bad headache.
I hate that, I hate the fact that my father and others like him suffer with such pain and the world treats it so non-shallot.
He's not doing too good lately. I fear the agony he faces day to day and I fear the day he can't face it any longer. I know our parents don't live on forever but he is only 50 years old and I fear his heart won't outlast those attacks. I'm angry that there are so many advances in other medical areas and the studies on CH are so limited. My father deserves better than that!
I know I am venting. sorry.
I am going to continue to send emails to the media.
Fill free to join me...
The squeeky wheel get's the attention!!!
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