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Posted by A Dame ( on September 25, 1999 at 08:35:53:

In Reply to: cluster headache with migrain posted by Deana on September 24, 1999 at 02:11:06:


I too have been suffering since I was a teen with migranes...along came the Clusters or maybe they were there all along, but too young to remember...In the 70s, however, I was diagnosed with Clusters...

My new Neuro finally agreed with me that I was a combination Migranes & Clusters...However, have only had clusters of late...lot of them..

I too had been pain free for 3 years...until now...NOW IT HAS CHANGED..EVERYTHING HAS CHANGED..The Demon is making up his rules as he goes along...not fair..The pain, the time (usually nocturnal between 2-5 a.m., now anytime...didn't usually last very long...how 3 days up to 12 days for one...meds have changed...now BP/Pulse is staying elevated...dangerously high...

I am a little older than you are...but had documentation on DHE45 that they tried me on when I was 13...so, I have been fighting this battle a long time...it is just my headaches are much worse this time around...Each time I really think I will surely die...

Triggers for me.....afternoon sun a killer...can't stand bright lights...not eating....too much chocolate or cheese....many things that I just don't do because it might cause a headache....After my trip to Cincinatti, I will probably not even try to have a mixed drink of any kind...just plain not worth the risk of having a headache...

Things that I like or that work Imitrex is a lifesaver...O2 tank in my bedroom....Ice and a lot of it...around my head, neck and forehead...no light...tape up VCR light in my bedroom so I can't see it...lay on a cold floor (my bathroom floor is my best place)...cold air deep breathing..

Good luck Deana, sounded so much like my history, had to respond...E-mail me if you like.

A Dame

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