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Posted by Stu Flashman ( on September 26, 1999 at 19:17:30:

In Reply to: Neuro posted by Bob Kipple on September 26, 1999 at 08:06:21:

I'd second Bob's comments. It makes no sense going to a neuro who's not familiar with CH. They'll just lead you down the wrong roads. You should be aware, however, that responses to meds are extremely variable. Unfortunately, it's very much trial and error. A good neuro will be able to try a wide range of options, depending on what has or hasn't worked for you before. A good neuro will spend quite a bit of time on your past history, including what you've already tried, what worked and didn't, etc.

I'd also agree not to dismiss preventive meds out of hand. I had pretty good luck with verapamil, but again what works for one person may not work for another. Unfortunately, treating CH is more of an art than a science. You might ask how long your doc has treated his longest-standing CH patient for. If he's a good doc, he'll have long-term patients. (Unfortunately, most CH sufferers are patients for the long term.) Good luck!

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