Posted by gary g (208.133.217.62) on October 05, 1999 at 00:31:53:
In Reply to: Someone has to say it posted by Todd on October 04, 1999 at 23:13:02:
Todd is one of the consistently more responsible and substantive contributors, has just said for a lot of us what we have been concerned with quite a bit the last few months -
This site is for & about a specific disease most commonly known as cluster headache
and THAT disease is very well recognized and readily diagnosed - it is NOT a catchall term for anybody with head pain,
if you don't know EXACTLY what CH is,
I can pretty much assure you that you don't have it
God Bless (seriously ) everybody else,
I too hope you find what you need,
but this is a SPECIALIZED forum - we are here to focus on a SINGLE COMMON PROBLEM, because if we do otherwise, the dilution and disarray destroys the focus and sharing of SPECIALIZED experience, and NOBODY gets any help in the end
for those of you who truly believe that as long as you're trying to help somebody, no matter what the problem, then anything goes - PLEASE remember, that is just an OPINION not gospel - and it IS NOT what the stated premise of this site directs
I cite 3 pretty substantial validations for this position:
1. It is what this site was all about until the last few months,and what a lot of us have worked on for a long time...
and:
2. It is Exactly what the actual front page and all the other pages on this wonderful site proclaim ...
and:
3. It is basically what the owner/webmaster has regularly posted no uncertain terms:
THIS FORUM IS FOR DEALING WITH THE CHALLENGE OF CLUSTER HEADACHES FIRST, FOREMOST AND EXCLUSIVELY
It IS NOT a general, free for all, let's us all feel good groupie hangout-
Sure we digress a bit, but ALWAYS ALWAYS the focus is cluster headaches
if you don't agree with this
FINE !!!!!!! START YOUR OWN SITE
SEE #1 #2 & #3 at top of this post
You wouldn't call the Cancer Society if you have trouble with diabetes.....
why is this such a difficult concept for so many to grasp ??????