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Posted by jackie ( on October 08, 1999 at 20:59:52:

i cant believe there is a web sight for cluster sufferers
for years i thought i was alone, for years so many people looked at me so strange when i had one.
thank god i havent had one in five years, why im not sure. i got clusters at thirteen years old and i was diagnosed about the age of eighteen. they were chronic for over 23 years i barely had any relief. i was on everything thats been listed and more the only thing that seemed to help was the predisone. that stopped my last attack five years ago and they havent been back since. one time the doctors put me on thorizine, i kind of lost faith in doctors at that time considering i was a 18 year old single mother of two with no help. the pills made me a walking zombie with cluster headaches. many nights i thought of suicide, thank god i didnt. i definetley think drinking alcohol didnt help. i think that drinking triggered many attacks. for years i would drink on the weekends and sometimes more. but in the past five years i barely drink, but even now if i drink a few glasses of wine a few weeks in a row, ive noticed the burning sensation in the face and eye would start. but thats where it would end im so afraid that one day they might come back. i know the hell all of you sufferers are going through. i pray for all of you. this is a great web site. im glad to know this is here. good luck and god bless to all of you.

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