Posted by Ken Hubner (199.224.105.124) on December 06, 1999 at 17:33:54:
In Reply to: How do you manage? posted by Frank on December 06, 1999 at 16:05:42:
Frank,
I'm currently on topamax and verapamil, plus of course oxygen for the breakthroughs in the early AM. I really just started the topamax, and I'm "building" the doseage; it seems to be working in that I'm not getting the real slammers anymore, and I understand it's working for a lot of people. It might be a different story come January, however.
Prednisone used to be my standby, old reliable, but that just last month ceased working for me. I'm planning a vacation in Mexico in February; obviously I can't take the O2 on the plane, so I don't know what I'm gonna do.
Sure do hate these things, though, and chronic is a whole new ball game. No time-outs!
Best to you, and high hopes for the future.
Ken