Posted by Jay (209.240.200.142) on December 11, 1999 at 12:16:10:
HI fellow clusterheads - I have CH's for 22 years now. I guess I'am in the club like it or not. For the first 18 years the cycle was app 1 year on 1 year off. KIPP scale #10's and 6 CH's per night every night. Did a lot of dancing. For the past 4 years I was only getting 1 to 4 CH's per week Kip #7.This was good, this I can live with,NO PROMLEM life is good. Three week ago- Hello I'am back, we have some catching up to do,6 to 8 per day #10+ every day. Went to Neur started me on Prednisolone and Neurontin. So far no help.
During the past 22 years my work required me to stand all the time NEVER sit down. I NEVER had a CH start while standing,only start at home while siting or lying down. several years ago I went to Russia to visit a friend,I took my CH's along with me. We would walk for hours at historical sites and museums - no CH's - drive to next location -CH -of course I was siting. There are many more examples I could give but I am sure you get the idea.When I tell the doctors of this they say it is only a coincidence. I think the only coincidence is all the doctors I see say it is a coincidence. Again - Please understand I have NEVER had a CH start while standing. this is over a period of 22 years. Just wonder if anyone else has had this situation. Now that I wrote this I guess I will sit down for awhile I'am tired of standing. Hope to hear from someone soon.No more pain. J