Posted by Margi (220.127.116.11) on January 18, 2000 at 11:42:05:
In Reply to: ANY THOUGHTS posted by Chuck C on January 17, 2000 at 21:46:26:
we've largely given up on doctors. My husband is the sufferer in our family and we've become so discouraged that we have found alternative combative methods to deal with CH in our house. Oxygen, Water, Dramamine(Gravol), Ice.
We've spent years going from doctor to doctor trying to explain and ending up receiving vacant stares and yet another prescription for a sinus infection. The Horton Syndrome (droopy eye, one pupil bigger than the other one) was really a stumper for the last doc Mike saw. I think she thought he was an alien or something.
You've really landed on the best resource you will find for Clusters. CH.com has lots to offer and lots of folks who understand what you are going through, both of you.
Feel free to email me directly if you need "off the record" support or just a shoulder. Just press my name in blue at the top of this message to get my email address.
Hang in there, that light at the end of the tunnel isn't necessarily always a train.
p.s. Todd and Linda: thank you both so much for your kind words, friends :)
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