Posted by Q (220.127.116.11) on January 30, 2000 at 05:09:39:
In Reply to: Search for an etiology posted by DocGreg on January 29, 2000 at 20:54:03:
Yes! I want to be a "Future Ex-CH'er". I for one am frustrated from the results obtained by the current approach to CH: a treatment of symptoms. I applaud DocGreg for his interest in the "cure" for our common condition.
I believe that the search for a "cure" for will be a relatively complex project and the search will involve many people from many disciplines. It will require a great deal of collaboration, communication and coordination. Rapid progress will require structure and organization and a single-minded purpose: find causes to find the cures.
I want there to be a place where this search can be coordinated. To this end, I have established the beginnings of a place in cyberspace for this to happen. This place can easily coexist with other CH-related efforts in a symbiotic relationship.
CHMB is a wonderful support group and a place to introduce newcomers to the world of hope for all those who suffer from CH. That focus should not be diluted.
OUCH is chartered to broadly serve the needs of the CH community. It's best and highest purpose will, I believe, be that of being the CH-Foundation. As it gets off the ground it will have to focus on many diverse aspects of being an umbrella organization. That focus should not be diluted.
While CH retains its niche-status, the medical community and allied healthcare industry will largely pass by CH. Their focus is already diluted. There are exceptions! They will be noticed and rewarded!
My talents are meager and my resources limited. However, I do have a desire to contribute as I can. DJ has set a high-standard example, which I can only strive to meet. But by his example I have established a prototype website upon which we can build the project to find the final resolution to the CH condition.
Come take a look at the first prototype. At the moment, you'll have to page down two levels, which should be obvious. It may take a little while to shake out some of the start-up issues, but it is a start. I believe it will grow gracefully to accommodate the project's needs as they evolve. Any ideas on how the study group should be recruited and organized will be greatly appreciated.
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