Posted by Cyndi with an i (22.214.171.124) on February 02, 2000 at 19:47:50:
In Reply to: Hi to everyone/newcommer posted by Cindy on February 01, 2000 at 03:22:39:
I am so sorry your here. I am also a supporter who knows what the devils dance does to the ones we love. I married Chuck and "the devil" eight years ago and would not give a second of it back. What I can tell you for sure is that stronger is not better. Covering up does not work for CH-What does work is a persistent supporter and the demands we make for "another" Dr. or someting else to try. Last Saturday with another weekend visit toa follow up only clinic I took Chucks medicine in with me and told the DR. -"here's waht we are going to do, and here's what I need from you" What I had with me was DHE injectuons which was one of the things they had tried during a hospital stay. What I needed was Regilan which eases the nausea caused by the shots. The Dr. looked at me and said-"Wow I've never seenn someone do this at home" He obvisouly had no idea what life in my home is like! I never could have imagined htat I would give my husband home injestions but as you know we will do anything we have to. If you have not heard of or tried DHE-It is not a narcotic-look into it-insist on it-demand it. It works for us-may not work for you but I know anything is worth a try.
We are pain free for 3 days.
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