Posted by Margi (220.127.116.11) on February 06, 2000 at 18:23:42:
In Reply to: Re: I'm a newbie here........ posted by Kristi on February 06, 2000 at 17:48:20:
Sorry you have had to find us but glad you did. Read everything you can get your hands on on this site, print out stuff and take it to your doc. Become your boyfriend's buffer zone/bulldog. The medical info here is great and we even have a doc who is a cluster sufferer too, Doc Greg! If you have a good neuro make good friends with him/her right away.
My husband has been a sufferer for more than 20 years and he has not found much relief from meds. He has battled his cycles with the water treatment, oxygen, ice and dramamine/gravol to help him sleep. He goes into cycle it seems every 12 months now, longest remission ever being 18 months but it used to be 6 months. It does drastically change both your lives when your loved one is in cycle, no two ways around that, but live every remission day to its fullest. Keeps you sane.
Please feel free to email me anytime at firstname.lastname@example.org if you need to swap supporter stories or if you just need a shoulder. I know what you go through. Encourage your boyfriend to visit the board too - we're just one big frustrated family at times, but there's a lot of help here for both of you.
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