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Posted by Piper ( on February 15, 2000 at 10:48:51:

At the risk of getting a ton of hate mail I thought I would post this.
I pulled up the picture page to show my parents. They have lived through this with me and also
have never known anyone else with this. They are very excited about me having found a place with
such support and information. As my mother looked at this she made the comment that everyone
in the pictures looks thin. My explaination for that was that if most of these people are like me
they probably burn it off from the pain. I can eat and do so its not an
eating disorder. Just thought I'd bring it up to see what others think. We wouldn't have been able to
see these traits if it were not for the pictures. I think it really helps in alot of ways to
compare our notes. A disclaimer: I am not trying to hurt anyones feelings it was just an observation
made by someone from the outside looking in.

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