Posted by Todd (184.108.40.206) on February 16, 2000 at 20:59:43:
In Reply to: Am I one of you? posted by Chally on February 16, 2000 at 19:40:13:
Thank you for such an open-minded first post.
We would love to help you, as well as we can, but we're going to need a lot more details. Would you describe your symptoms, please? Please be as thorough as you can, as to frequency, duration, intensity, location of pain, etc.
Now the cautious disclaimer:
CH is a very specific disorder, with very specific symptoms, although with a degree of variability also.
It also seems to be the latest "disorder d'jour" for docs who can't or don't care to make accurate diagnoses. The good news is, if this keeps up, we won't be a .6% minority under the radar screens of the researchers and drug companies. The bad news is, no treatment will ever be found because the researchers and drug companies will be dealing with such a diverse collection of separate and distinct disorders that no possible commonality will be found.
We sincerely want to help. We sincerely hope you DON'T have clusters. But either way, you need solid information so that you can insist upon the appropriate course of treatment.
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