Posted by Nancy (188.8.131.52) on March 08, 2000 at 01:10:45:
In Reply to: Thanks Bob...and welcome new comers! posted by Dave on March 07, 2000 at 13:22:01:
I have clusters and it hurts worst not having people believe me cuz my symptoms might not fit just like someone else to a tee. My pain is more in the temple than the eye, right next to the eye and under, but have all the rest...plus another condition that will some times go off with the cluster in the face.
I'm sure most of you know how the outside world doesn't believe/understand us and then to have people who should only makes you feel very alone.
I've wouldn't of been on this board from the beginning of it if I didn't feel in my heart/ been dx too that I have them...nothing else fits. I've seen to many things and the test posted that fits me and I have nothing like a migraine or tension or neuralgia type. To many of the symptoms I have other than the eye pain but it does droop and pupil changes.
There are plenty of places I could have gone but stay here cuz this is what I have.
I don't feel I have to explain myself to anyone here...it's your problem and "only a few with a closed mind or not enough experience with the unsual cases."
Just my 0.02 cents worth and may I have change back, LOL
I do think some here might have migraines but I think they should be treated with respect and pointed in the right direction for help.
I too don't understand the hatefulness that comes across some times. That is the reason we lost some people cuz they saw the way the board was going with judgement and hatefulness. It shows what a person is really made of. You made some really good points Dave. I think we can be better people, it wasn't always this way on here. Have a good eveing all. And may the demon sleep.
Hugs and a smile,
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