Posted by Elaine (171.218.63.42) on March 10, 2000 at 17:53:37:
OUCH Organization for Understanding Cluster Headaches was formed in hope to get the word out to the public about clusters. That clusters are not just a headache you can take an aspirin and get over! We hope we can do more to get more studies done on clusters. We hope to get insurance company’s to OK more medication for us a month. We hope more doctors will understand our pain. We hope to find help for people who have clusters that can’t work. We hope to find help for families who deal with a loved one who has clusters. Maybe down the road we can help pay for medication for people who can not afford it! If we all join OUCH and work hard maybe we can get the message out to the right person and someday find a cause and a cure! There is so much OUCH can do. It’s worth $25 to me to try!
I hate clusters I hate to know my friends are in pain and I can do nothing but say I know! I love this board and the people here. But I know posting on this board is never going to find us help! So I am a member and I am going to do everything in my power to see it get off the ground.
These are the things OUCH has to offer us! Do you want to give it a shot or do you want to sit and fuss and complain?
Go to www.clusterheadaches.org look the By Laws over check things out ! If you want to become a member then go to Bob P site and print out the form fill it out and mail it in! Please think of a day that we find a cause and or cure! We have the right to be pain free this day and time! I will fight for it I hope you will to!