Posted by Q (18.104.22.168) on March 16, 2000 at 11:08:19:
In Reply to: Pathology...a possible use for a deadhead. posted by Dennis O'C on March 15, 2000 at 01:03:37:
...About 6 months ago I proposed to the CHMB group that I would collect and preserve samples of DNA to be held for future researchers to use in the CH analysis. There was some discussion, and questions about confidentiality, authentication, etc. arose.
...fast forward to present. I am now working with my lawyer and accountant to establish a formal non-profit organization which will serve as the "CH Study Group". This entity may be an appropriate place for items such as DNA and tissue samples to be coordinated. The CH Study Group would compliment the efforts of OUCH in OUCH's role as the overall "CH Foundation" by serving as the research coordination function.
Tissue collection and storage for purposes of research is different from collection and storage for transplant. Certain tissues, such as hair and fingernails, are easy to collect and store (simply put them is a dry ziplock bag, while "wet tissues, such as entire brains, might be more difficult to collect and store, even if frozen. Perhaps those two gallon pickle jars with embalming fluid could be used. Someone with the appropriate shelf space in a cellar could hold them on behalf of the study group. Seriously, though these details can be worked out.
Anyone who wishes to become involved in the study group is encouraged to visit the website at http://www.i-ch.org. You may provide your feedback here or via e-mail directly to me.
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