Posted by Bennie Sue (220.127.116.11) on March 22, 2000 at 17:44:06:
In Reply to: They have found a reason for CHs posted by Terry Lieck on March 22, 2000 at 14:33:23:
Yes, Dr. Goadsby is our hero because he keeps trying to help us. His discoveries are valuable, but there is still the question of the chicken and the egg. Does the gray matter increase with CH or do we have CH because we have too much gray matter?A lot must still be done to find medicines that work for everyone - that is the most important thing to me. It is interesting to speculate about the cause, and generally the cause must be known before a cure is found, but we are soooo tired of waiting - the chronic sufferers especially.
OUCH can help by getting other researchers involved and alerting doctors to the need for better treatment. We have an orphan disease with no foundations behind us.Still, I am hopeful of a cure or at least a preventative medication.
Stay with us and learn all you can about CH, then educate you doctor if necessary.
Have a good evening. Bennie Sue
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