ok Nick ...

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Posted by August ( on April 01, 2000 at 22:10:01:

In Reply to: Good or Bad Doctor? for a first timer posted by NickD on April 01, 2000 at 09:36:21:

this is what i would do. I'd list all the triggers you have, all the environments that are triggers, the meds that are triggers, and give this to a new doctor. Come armed with the information that you found out about Multiple Chemical Sensitivity Syndrome and ask this doctor to look into this possibility. You may think I'm dogging you, or don't want you to be here. That is not the reason why I am taking the time to try to point you in the right direction. Are you getting relief by this doctor you currently have? Does he think you have cluster headaches when you tell him about your four day attacks? What does he say when you tell him about your rebound headaches that come?

I can say this in no other way, and after this post I give up. If you want to get relief then find a doctor who knows how to diagnose you correctly.

Am I doctor? No. I am a chronic cluster headache sufferer. I know this beast intimately as do many others. I will say it again. You don't have cluster headaches. You do have something, and I can tell you are in pain and you need relief. Take my help that I offer for no other reason than trying to help you, or continue to believe you are a square block that can fit into a round hole if you push hard enough.

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