Good question. Long answer.

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Posted by Paco ( on April 22, 2000 at 12:19:04:

In Reply to: a question of everyone posted by jonny on April 21, 2000 at 21:11:35:

Before I found this gathering of sufferers, I was afraid that I would not be able to withstand the pain if the MF ever returned with the intensity of those first few years. I have now learned to manage my pain with the aid of oxygen, but the attacks have not reached the panic state in several years. Now I know that others have and do withstand these things at unbearable levels--I call it the panic level of pain when you cannot control your physical reactions. I think now that if they can hold on, maybe I will be able to. Now I have people to talk with who know what I'm saying; no one else, even our neurologists, understands these things. I have learned--a little--about Drummer's cascade of events explanation of a cluster attack. I have learned about Kip's chilling pot, Margi's H2Ox3, Carl's strength to get back up after every KO, jonny's determination to drag everybody to the finish line with him. I've learned that if worse comes to worse, Elaine will adopt me and probably send a limo to pick me up. I have learned that an Italian lover who spreads kisses by the truckload cares about every suffering soul that posts here even telephones to cheer you up. Now I can even click up a picture of someone who posts, putting a real person behind the words. This place has widened my world of wonderful friends. I have gained so much more than I could ever repay, but I promise to try.

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