Posted by pinksharkmark (196.3.74.235) on May 24, 2000 at 15:06:39:
In Reply to: PinkSharkMark.................................. posted by Tracy on May 24, 2000 at 04:32:55:
Sorry... I did read your posts. I thought that my post labelled "my response to your responses" showed that I had considered the feedback and modified my position accordingly. I guess, as usual, my lack of ability to express myself clearly in writing is the cause for the confusion. I didn't respond individually to every reply to my post, but I did read them all, hence my comments about how I originally misread some "merciless ribbing" as flames. Also see my comments about how if journalists couldn't deal with the flavor of some of the posts, they were unlikely to do a story about us justice anyway.
In future, I will not refer anyone who is not a bona fide clusterhead to this site. It is, after all, made plain in the opening page that this is a site exclusively for clusterheads, so I was doing a bad thing by sending non-CHers here for a peek at the inhabitants, especially neurologists. I will trust you that it would do no good at all to have any neurologist check out this site, since all of them have the same mindset as your GP, and it wouldn't change their minds a jot.
My suggestions that some might want to tone things down a tad were, of course, just suggestions. Some agreed with me... some didn't. So be it. I won't pursue it further since apparently I am not the first to make these suggestions, and I probably won't be the last. After all, people will do want they want to do.
In conclusion, I was out of line to offer my opinions of how this board might continue to be a tremendous resource while making it a bit more pleasant at the same time. This board is WAY better than it was a year ago. It has evolved into a forum that is perfect in every way and cannot be improved on. DJ's closing of the board for a few days some months ago and his post of November 12 1999 makes that as plain as the nose on my face.
Future posts of mine will deal with information-gathering and information-giving, and, when it gets too bad, some whining of my own. I can whine with the best of y'all, as my posts of last April will attest! (and no, I am not being sarcastic... I am a true sissy when it comes to pain and sometimes I just gotta search for a shoulder to cry on!)
Infinite thanks to DJ for creating this site. Infinite thanks to all of you for taking the time to help fellow victims.
regards
pinky