Posted by cheryl allman (220.127.116.11) on May 30, 2000 at 17:05:16:
the mothers` name is Julie Bedell, her daughter Emma is the sufferer at 12 years old. She has just found out she suffers from CH and is asking about meds and in need of some advice. I told her to tell Emma she is not alone and there are thousands like her and that she can come here for the love and support she needs. I know I can count on you guys to offer a helping word or two. This is all a very daunting time for this child and she must be so brave. So if you see her name on the board, please help as much as you all possibly can.
Thank you guys and gals.
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