Addendum: The Michigan clinic is imperious and condescending

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Posted by Maryse ( on June 02, 2000 at 16:07:32:

In Reply to: Thanks, Paquito posted by Maryse on June 02, 2000 at 15:38:09:

Here's what I just wrote to the Michigan clinic (I once saw Joel Saper, its head,
mock a woman's claim that she had cluster headaches):

Please consider correcting your Web site as follows:
In the FAQs concerning Cluster Headache, you
state that "cluster headache occurs predominantly in males....
Most (not all) cluster headache patients are heavy smokers
and alcohol drinkers...."
Please consult, and look at the
results of the "cluster survey" in the left margin of
the home page. This survey has been taken by about
4,000 cluster sufferers around the world. Even accounting
for erroneous answers, the results showing that 26% of sufferers
are women, and that most sufferers are not "heavy smokers and drinkers,"
are very likely correct.
These results are also beginning to be reflected in the latest
medical literature.
I ask that you please change your detrimental
description of this syndrome's sufferers.
Maryse B. (female 30-year sufferer of classical Cluster Headache)

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