Very good advice!

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Posted by Karen ( on June 24, 2000 at 18:42:51:

In Reply to: doctors posted by Annemarie on June 24, 2000 at 18:19:43:

Especially about bringing copies to the ER. Even though the ER I took Stephen to was empathetic they talked migraine even when I told them this was something completely different than a migraine. I told them he did get migraines but when he has those he hates the lights, sounds and being moved around. He was dancing the dance, lights did not bother him, nor did moving. He also doesn't make sounds when he is having a migrain. With CHs he sounds like an animal dying a slow death. They didn't listen until they spoke to Steve's neurologist who said it sounded like clusters. Next time I am bringing information with me.

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