I'm sorry

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Posted by Todd ( on June 25, 2000 at 21:02:47:

In Reply to: 4 yr old w/ headaches posted by Sherri Owens on June 25, 2000 at 19:22:23:

Sherri, I can't express how sorry I am to hear about your son.

Clusters in a 4 y/o are definitely NOT common, but sadly they have been reported. Nonetheless, I would explore EVERY option before accepting a diagnosis, due to the extreme rarity. Find a good neurologist who understands kids as well as CH.
Click the link below for some additional ideas as to sources of docs and info.

I'm afraid I don't know what treatments might be used in a child so young. Prednisone, verapamil and lithium are the most common preventatives. Imitrex and inhaling pure oxygen (O2) are the most common abortives. Certainly, you would need a sharp doc to make sure the dosages are correct.

Consider also CPH...symptoms are very similar to CH, but more frequent and shorter in duration. It's beleived to be 100% treatable by Indomethicin.

Good luck, and post again with more details.

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