Posted by Bennie Sue (63.16.4.252) on July 23, 2000 at 17:56:06:
The enthusiasm of all you people is just great. I am creating a new questionnaire, as many of you may know. I hope it will be ready for CHAW.
Annemarie is editing it and helping me with it tremendously.
There is still one thing I need from all of you.
This questionnaire will attempt to cover every aspect of CH as *we, the expert sufferers* experience it. But my brain capacity is limited,and I cannot remember all your excellent posts over the few months I have been here. (And goodness knows, I would never get done if I had to read the copious archives.)
Sooo, if you can remember a peculiar or unusual symptom you or someone else posted, please post it again. I am referring to odd things that many people may not experience.
For example, I get a tiny sac of fluid on my upper gumline on the affected side when an attack is about to erupt, and sometimes when there are shadows. That is one of the most painful places I have to contend with during an attack, sometimes as bad as the pain behind my eye and in my temple. It is the reason I hold hot coffee in my mouth in that area - that soothes very much. I never mentioned this before because it seemed so obscure and insignificant - a thing someone else might not even notice. But it is a phenomenon that exists in my case and possibly in the case of others.
I seem to remember some posts where people discussed bumps and knots, but that was a long time ago.
Thanks to all for wracking your brains in the cause of
"science".