Posted by MIKE L (63.225.233.111) on August 30, 2000 at 01:07:07:
In Reply to: Mike posted by Ted on August 29, 2000 at 23:51:15:
I am defensive. I have been told all the usual BS about pulling myself out of it you know the drill. When I have found something that works I have been busted around everywhere I go. I do have an inner feeling of how others look at me. A lot of people say they don't care what others think of them. I do care. I just can't stand to see so many people hurting and when I mention what has helped me other people (including CHers scare them to death out of possibly trying it. I have mentioned often that I know it's not for everyone. I just keep reading about all the things that are being used that aren't working or working poorly. I have tried almost all of them more then once. O2, lithium, verapamil, Neurontin, diamox etc. etc.. In all honesty how many have tried for 2-3 months the treatment that has helped me so much. I just sit here with no pain and hurt when I feel others trying to avoid what works for me. And it hurts to have the e-mail that I get. "Leave us alone You doper". and worse. I do get more positive then negative but usually not in private. When I start having people tell me I tried it for 3 months and no help. Then at least I know they have had the chance. I was scared to go on daily narcotics. Why? Because of all the misinformation and good information. I resisted for a year. I have a big ego. If you could sit with my Dr. and learn all the details of my therapy it would have a different impact. But here I go again getting defensive! sorry all. MIKE L