I am a CH sufferer with little ones.

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Posted by Tammy ( on September 01, 2000 at 17:02:33:

In Reply to: Wife of a CH sufferer posted by Naomi on September 01, 2000 at 15:38:46:

I am not a good source of medical information...but I do have little ones who have to see me with clusters.I think children ask questions about heaven and dying in all sorts of situations.My girls have asked me about it many times as with many other hard sujects to try and explain.There are alot of people on here who have suffered for 20 30 or more years.I met on fellow the other night who has 6 kids ranging from 1 to 25 he has been suffering for 24years.It is tough but maybe with some advise about what types of medical treatments to try from some of the oldtimers,something may work for your husband.Think of it as there are millions of people who live with disabilities of some sort.Most of them having children.My husband for example :his mother is bed ridden with a neuro muscular diesese.She has been this way since his sister and his self were little.They both have grown to be the most well ajusted beautiful caring people you would ever want to meet.I don't think is going to harm you little one.I do think it is more of a strain on your marriage.I myself hate seeing anyone in pain.It is very disturbing especially if you can't help.Woman are made to want to fix everyone and everything.Seeing a loved one in pain is so awful to deal with.There is another chat area where alot of the people from this MB chat...www.headachesupportgroups.com
Come in and ask anything.There are so many wonderful people that want to help you both.
I hope this helps.I look forward to meeting you in chat.
Hugs and kisses for you and your family.

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