Posted by August (206.103.56.29) on September 09, 2000 at 23:35:24:
I've been reading people's thoughts on OUCH, and some great points were brought up. I don't have anything I could add to what Bennie Sue, Donna and Margaret are saying.
I will add somethings I have been thinking about. OUCH is small now. Maybe the fact that it is small and just starting out might be a reason why people are not PASSIONATELY into this cause. Yes, it's an organization, but it's also a cause. Let's get PASSIONATE!! Let's put all the years of torture into an energy that can make a difference!!
Here is something that i have been cooking up in my brain. I've mentioned it before here. I think a way to bring about awareness to both cluster headaches and OUCH, would be to compile a book that has short stories, poetry, and art in it. We have so much talent here at this site and Elaine's site alone. We could collaborate our efforts and put out a book. All proceeds could go to OUCH. I think a book that both illustrates and portrays graphically what cluster headaches really are would bring about an impression that would stick in people's minds. I've been trying to put together a web site to start this project. I haven't finished it yet. I'm learning how to build it on my own. I have limited energy and good days that let me work on it. I'm still trying to complete it. I will be the first one to admit I am not doing enough for our cause. I think, well I don't have enough energy so what good am i? I'm not reliable because i get sick all the time. I haven't voluntered the time I do get because of these fears and excuses. I'm going to.
You know, I can't think of a good reason why a person wouldn't want to join. We need to stop thinking short term of what this organization can do for us now, and look ahead into the future. We don't know if CH is hereditary. I believe it is. Even for the chance it might be, think about how OUCH can help your future children. Think about how it can help our young members, like Karen's son Steve. These are our babies out there. Don't we want to do anything and everything we can to help them? I want to!! Let's get PASSIONATE about that!!
ok, i'm done, ... or am I?!?