Posted by anthony chappell (126.96.36.199) on September 19, 2000 at 19:10:56:
Last year I used this message board to talk to people about cluster headaches.I was confusing clusters with my migraines - but that is not my message to you.
In my numerous messages with various sufferers I disclosed a great deal of personal and private information about myself - including the sexuality problems I suffered before I was cured of my migraines with 'beta blockers'.
Recently I went into the search engine 'YAHOO' and typed in my name 'Anthony Chappell' to see if,in some way,details of my litigation in the European Court of Human Rights (application number 10463/83) was information in the public domain and could be found by entering my name.
The engine found some 6,000 'sites' for my name and, to my outrage,the second site (site number 2 of the 6,000 - on page 1) gave details of my communications on this message board.
I do not know how this happened but such a thing is a flagrant violation of my (and your) right of privacy.
To enter a 'medical' message board and make private disclosures about my health and private life to, what I thought, was a limited number of people with similar problems is,from my experience, dangerous.
You can discover this to be the truth by simply entering my name into 'YAHOO'.
I suggest that you enter your own name into 'YAHOO' to discover if the same thing has happened to you.If so please contact me at email@example.com and, perhaps,if there are enough of us to complain this matter can be brought to the attention of the relavant authorities.
I will be running this message regularly until the owner/organiser of this board explains how this happened and convinces me that this will not happen to other sufferers.
My sympathy to you all and I am sorry to bring this matter to your attention.
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