Posted by Rick T on February 14, 1999 at 18:53:39:
I have read posts in the past from people who said they have a dr with CH. I would be most appreciative if anyone could give me names, addresses and or phone numbers of any. I'm so tired of dealing with doctors and even neurologists who say they know how to treat clusters, but they don't have a clue. Also what is the best major head pain center closest to Western Kentucky? I'm at the end of my rope. I just went off all my meds a few weeks ago. I kept telling the neurologist (this is a new one I just changed to because my other one wasn't understanding enough) that the meds weren't helping, just making me feel pukey (sp?). His answer was try it a little longer, like 3 months wasn't long enough. The only thing that helps me is Maxalt, and I can't get enough prescriptions to keep me sane. They all want to say you're limited to 4 times per week. That's usually your clue that a dr doesn't know the intensity of the pain of CH. If there's something that stops the pain and they want to limit it even though you're willing to accept the risks, then they are clueless!!