Posted by Elizabeth (18.104.22.168) on October 03, 2000 at 14:24:47:
My husband has been a sufferer since his teens, he is now in his 40s. I dragged him to doctors until he at last was dx'd with chronic cluster. He had them constantly, literally. No time off, no seasons, no break. He has lived for years on OTCs that only dulled the pain. The despair he lives with is unbelieveable. I am so grateful for this website because I think he is starting to understand that this won't just stop and that is very hard for him to accept. I hope his feeling not alone with this site will help. He is looking at 02 treatment but I guess I am writing because he is so miserable. He has continued to work and I don't know how he goes on, but it has almost completely curtailed his life and all activities besides sleeping to get away from the pain and waiting for the next round of pills. It's a terrible existance. How do others live with the chronic pain, without the breaks that others have? I am not minimizing the pain of the non-chronic sufferers, because I have seen the intensity and horror of the pain. I am only wondering what else has helped the chronic sufferers with no breaks? His prescribed meds (Esgic, Marten, Amytriptiline, and others) have done nothing. Thanks you for letting me talk at length like this. I will check back in and include you all in my prayers.
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