Posted by Larry (220.127.116.11) on October 08, 2000 at 21:03:37:
In Reply to: Will someone cheer me up please? posted by Duncan on October 08, 2000 at 18:24:39:
I can feel what you're going through. Please listen to Susan. You have to be as quiet as you can. I sit with my left hand across my forehead and grip each side of my eye sockets and hold on tight. My
arm aches after an attack from squeezing to hard. I sit on something (bed or chair) that is the right height so my feet are on the floor easily, so there is no downward pulling from the waist. My head always is
slanted to the right so all the muscles in my neck aren't pulled om the right side. I have to consciously keep my eyeballs relaxed. I found that during the pain I was, or the pain was, forcing them to the top of
the socket. No light, no noise, very cool temps. Then I just sit there and try to stay calm sweating profusley, exhausted when it was done. I'm not one of those that can get up and move around. Just sit there
paralyzed in pain. This is what I have to do. I hope you can pick something out that might ease it a little to help. I also can't think or concentrate on any one thing. It seems to increase the hurt if I do that.
I just have to let my mind wander or float.
I used to have to need my meds increased after time. My body would become adjusted to the level and wouldn't do what it was supposed to so an increase was needed. Maybe you should see your Dr. as soon as possible.
If they continue as you say, I would see a NeuroSurgeon and discuss Radiofrequency Trigeminal Rhizotomy. That's a type of surgery for CH sufferers who are chronic and have continual pain.
Do you have someone to be with you during this time? I call them a pain partner. Someone who is familiar with CH and will help you if you need something. Sometimes that can be as good as meds for getting through an
Lastly Duncan - You've got to hang on. The pain will stop. It always does. One day at a time.
Hope you have PFD@N SOON!
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