So many of us are suffering and too many are


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Posted by Donna (63.16.122.62) on October 10, 2000 at 20:16:55:

talking about giving up. One is too many.

I am getting angry. Why isn't research being done at a
pace comparable to other illness'? We do know the answer
to that. Money.

OK. So now we have our own organization. We waited for years
for something like OUCH to come along. Now that it's here,
we have a measily 108 members. I don't understand this.

I've heard all kinds of excuses. None of them, I said
none of them convince me that people shouldn't join.

Who am I. Nobody. Just an older gal who's headaches started
in the early '60s and quit completely and without any
known reason in 1986.

My 29 year old son has clusters. I want to see a cure for
him and for you.

How will this be accomplished? Only by membership dues
that are invested as seed money into a research project.
Only with concentrated effort in making enough noise so that
"they" hear us. Where are all the clusterheads-in the sand?

Come on people. Let's do something.




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