Chronic no more

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Posted by John B ( on October 22, 2000 at 02:50:12:

I was told by a doctor when I was sixteen that the chronic CH that I was having would go away by the time I was forty. A couple of years later I was told that this was not true. At 18 it did not seem to matter what was going to be happening in 22 years. At 30 my CCH stopped occuring every day for the first time ever, and over the last three years the lenght of time between bouts increases each time. I have just been feeling some very mild ones the last couple of weeks and it has been over a year since the last bad cluster. I just happened to be killing some time on the internet waiting for the pain to pass so I could go to bed, when I tried doing a search on netscape to see what I might find under Cluster Headache. This site seems to be a great place for info. I am glad to see this has come about, I wish it would have exsisted when I was first diagnosed. I just thought I would post this message to bring hope to anyone out there that is hoping CH can decrease with age. I suppose it is not a rule that this must happen, but I hope it is also not uncommon. One more quick note. I tried a procedure called a Trygeminal Ganglion Nerve implant, It was a nerve stimulator placed on the nerve in my head with a wire running under the skin to my chest where I have a device that shocked the nerve. The power of the shock and the frequency of the jolt was controllable. It did nothing to help at all and I would not suggest it to anyone. If anything it left me even more worn out after the CH.

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