Posted by Miguel (188.8.131.52) on October 28, 2000 at 11:32:34:
In Reply to: Plain old frustration posted by Bob P on October 28, 2000 at 09:34:12:
I agree with what Flash and you note. I think it
is a mixture of both cases for most folks.
I feel that it is important to once more address
that as a syndrome there will likely not be a
magic bullet, i.e.: the "take two and call me
in the morning" approach. However, mitigating pain
would do wonders. Since we know that the condition
itself does not cause death, only perhaps in worse case
scenarios where someone may take their life out
of frustration, as you noted Bob, the pain should be
the focus. Ameliorating the pain would likely be
the best thing we can settle for at the moment.
It doesn't matter that the condition continues. We
just want the pain to stop. It is the way the condition
makes itself known. So, if we stop the pain, we may
perhaps have situation not disimilar to - Out sight
out of mind. Pain management would be paramount then.
How do we stop the pain? In so far, very little
treatments are effective, and much less effective
on a long term basis. We perhaps need to accept that
taking daily doses of whatever the drug of choice is
to control the pain (or monthly doses, or every six months)
is acceptable. After all, those who suffer from other
disorders such as diabetes, high blood pressure, etc
do so. Why should our problem be different.
Once more, the real solutions will come once we
as a group stop treating CH as a 2 aspirin headache.
We know two aspirins will not do it.
Post a Followup