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Posted by Simon ( on November 26, 2000 at 02:46:33:

In Reply to: Need some help posted by Shelia on November 25, 2000 at 23:29:42:

How awful for your son - and for you - you must feel powerless to help.

It might be worth trying the quiz on the left to see if it could be CPH, as the number of attacks is very high. If it is that you should be thinking about a drug called Indomethacin. Clearly the standard cluster abortives are going to be a problem if it is clusters as there are limits to the number even an adult can take.

There are one or two parents on the board who might be able to give you some tips - I've e-mailed one I know called Julie, who has a thirteen year old daughter with clusters, asking her to read your post and perhaps reply.

Good luck.


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