Posted by Simon (126.96.36.199) on November 26, 2000 at 03:04:40:
In Reply to: The word cluster migraine.... posted by August on November 25, 2000 at 22:00:18:
You oldies all know my views, so a summary.
As Bob said this IS no such official condition as Cluster Migraines - simple as that.
If someone has both ch and migraine, why don't doctors say that. The two ARE different, and (more importantly) need different sets of medications. A doctor calling them CM shows that he is about to guess - again IMHO!
Using the phrase for ch sufferers causes two problems - people don't then understand the pain and we dilute the "Cause". (Imagine if MS had two or three different names - the general public would have even less chance of understanding)
However, we must make sure as several have said, that we don't shoot the messenger. If I had been told I had CM I would have believed it - after all at that point I believed doctors knew everything.
The best thing is for those so diagnosed to ask their doctors for documentation about this strange condition and wait (I suspect a considerable time) for them to produce it!
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