Posted by Charlie S (188.8.131.52) on December 02, 2000 at 01:43:50:
In Reply to: biofeedback/technique = confused GUGI posted by GUGI on December 01, 2000 at 07:26:34:
I learned to treat the syndrome as a vascular problem and to concentrate on warming my hands by our slight ability to alter our circulation. It should take you just a few minutes to develop that little skill. I hold my hands in my lap or lower than my chest and concentrate on getting them warm. I've gotten very good at it and I'm doing it as I'm typing. (It's great when your hands are cold too) Anyway when your hands start to warm, start to concentrate on forcing blood away from your throbbing eye and down your neck and into your arms, legs, hands, and lower body. DO NOT LET UP. If you do it won't be very effective. This has been described as "filling your hands with redirected blood kept away from the head" which has the effect of easing the pressure on the dilated blood vessel which is causing the pain.
It is exhausting, but it has shortened my attacks and often with less pain. There really is little else to this. I don't really visualize as some people do. I make my hands almost throb with this.
It was told to me just as I'm writing here by a neurologist who was a rarity. He understood what this is like and at the time there were few good drugs for this. It takes some time but it will work often enough to be worth the effort.
I hope this answers your questions about this. Feel free to email me if you like. I don't have more information on it really but you'll find my biofeedback posts here from time to time. They are pretty much what I'm writing here though.
I wish you all the best Gugi
Stay well,- - -Charlie S
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