Posted by Candace (126.96.36.199) on December 08, 2000 at 14:32:22:
In Reply to: Hi Candace posted by Ueli on December 08, 2000 at 12:07:54:
I can respect your opinion, but I disagree. I think it would be much harder to start from scratch saying this is a distinct disease. They link us together because they both deal with head pain and the brain. It would be much better in my opinion to say we have tried this medicine for migraine use and it didn't work, but this one did. And try to find out why, and try to fine tune it to work for us. We do need to speak up whenever we can and write articles, make the facts known... To help ourselves and others who may be suffering alone. The Galaxo website does have some information(not much) about the use for cluster headaches, and the nasal spray comes in 5, 10 and 20 mg. Anyway, I am planning to join OUCH and would like to be an active member, but I am waiting until after January, due to Christmas spending, and also because all memberships expire at the end of the year and that is around the corner. What do you do with the funds? What are the plans for next year?
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