Cluster Season Again

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Posted by Joe P ( on December 25, 2000 at 13:42:45:

Well well well... for the first time, I actually wound up at the ER with an attack. I thought before that I had actually felt the worst the demon could bring... boy was I ever wrong. This one hit at 1 am on Sunday morning. I was practically screaming fromt he pain, only quieted because I didn't want to wake the entire building. Scared my partner half to death, though. By the time I got to the ER, the attack was over. They did prescribe Compazine for me, which I had never heard of for cluster. I'm hoping to squeeze in for an appt with my PCP tomorrow, but it may be tough the day after Christmas. I've gotten an average of 4-5 attacks per day for teh last few days, and sleep has been for maybe an hour or two at a time. Sorry to come in and just vent, but I'm getting kinda sick of it all. Usually my bout come in slowly, with an attack or two per week, building over several weeks to the point of 3-5 per day. This time the bout has been going on for only about two weeks, and jumped from 2 in the first week do multiple daily attacks. Just today, it's only 1:45 pm, and I've already had 4 attacks, all of a mid-grade severity. My partner feels helpless, which I know all of us do. This is his first exposure to my serious attacks, and I feel so bad for him. But he's been pretty great through it all. I'm hoping my doc can get me on oxygen, since I've never actually tried it before.

Christmas blessings to all here, and thanks for being here. May the new year bring the breakthrough we all need so very much. Thanks for listening...


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