Posted by Charlie S (184.108.40.206) on January 17, 2001 at 00:20:43:
In Reply to: Newly diagonosed, any advice? posted by Callie on January 16, 2001 at 22:38:37:
Print out all that you can.
Give people this and other links.
Try to find someone around who has some knowledge of this condition. They exist but like many other syndromes, people think they are all alone.
It's tough but keep us posted. We are here to help.
Best of luck,- - -Charlie S
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