Posted by Frank (216.249.90.54) on February 05, 2001 at 22:10:30:
In Reply to: Doc says, know your disease. posted by Bob P on February 05, 2001 at 18:25:29:
I agree we gotta educate our doctors about CH. Since it affects only 1% (or so) of the population, it's not like they see it everyday.
I've been going to the same doctor for 18 years (not much choice since I have HMO insurance)... but he's o.k. so I've stuck with him.
I and have passed along a lot of CH information to him... medical journal articles... info about meds... studies... this website, etc.
If you do it in a non-threatening way (at least with my doctor) they don't mind, and you end up with a doctor more knowledgable about CH, and getting what you want (since the doctor knows you know better than him what you're talking about).