Posted by jacque (188.8.131.52) on February 21, 2001 at 09:01:24:
I happened across 48 hours last night and they did the show or segment on chronic pain patients. thankfully they had some of it on HAs.!!! They showed this 14 year old boy SCREAMING, CRYING CURLED UP BEATING HIS FISTS HOLDING HIS HEAD SQUIRMING ON THE COUCH WITH HIS MOM TRYING TO HOLD ONTO HIM FOR DEAR LIFE!!! he claims he gets these HAs every 8 days or so, morning noon or night! THE SHOW CALLED THEM MIGRAINES! NO MENTION OF CLUSTERS. the doctor interviewed also suffers from 'MIGRAINES' but had the exact same symptoms as CLUSTERS! go figure! it confused me so! they talked about the runny eye, pain behind the eye, in the side of the head area. BUT NEVER CALLED THEM CLUSTERS! i sat there in awe and WAITED to hear the word CLUSTER! NEVER!!! they also interviewed a dad whose son had one solid chronic unilateral HA for 3 years and finally committed suicide, this was his only relief, he said in the suicide letter. very sad, that there was no hope and no relief and no help for this youn 26 year old.
I suppose my concern on this post is that they never mentioned clusters,, and WHY! I hope someone else saw it,,,, maybe it was a repeat and i am literally "a day behind" (smile)!!!
my husband was in baltimore and we were on the phone and he listened to the segment over the phone... i dont think he had a clue, til then... how serious they can be.
GOOD MORNING TO EVERYBODY and i HOPE and PRAY you are feeling WELL and BLESSED beyond belief!
wishing you a blessing of healing!
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