New poster with questions...

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Posted by kbwood ( on February 21, 2001 at 12:46:49:


New poster here. This is a very imformative board,,thanks!!

My husband is a CH sufferer and I feel for anyone that has to endure these thing!

When do most of you go to the doctor once the CH's begin?(We have some Imitrix injections and Depakote on hand) He had his 1st CH two nites ago, after an absence of 2 years, been a sufferer for about 20 years, but only seem to get them about every 2 years now instead of every 6 months and have a doctor appt. on Monday. How do you convinve the neurologist that these things are real? I remember the 1st appointment about 4 years ago and he told him to take childrens's Motrin (yeah right) because the liquid would absorb faster. Of course I laughed in his face and asked him had he ever seen a CH in the act or had only read about them. Of course he said no, and I told him that is what I thought. Started throwing out facts and symptons, meds for them and really jumped his case and his attitude did change. He was started on prednisone(sp) and Depakote, and the Imitrix injections. One of the biggest problems my husband has with the Imitrix is deciding when to use this the one to use it on or will I have another one in a couple of hours that will be more intense than this one?

What type of questions do you ask your doctor?

What do you do if you would rather see his partner because you have gotten better responses from him when you talk to him on the phone and the staff makes you have the appt. with the original doctor because that is who you started out with? (I cheat...I will find out when the partner is on call and call him at the hospital for refills on the meds and he is much more responsive to our needs)

How do you convince the doctor you are not a pill junkie but are truly suffering?

Any info will be helpful.....Thanks

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